a tough gig

I know Sachin’s been slaying cancer since June but this week felt especially surreal for me. While I’ve been to every single appointment, chemo round, and scan, this surgery created a level of reality that I couldn’t mentally wrap my head around.

While he had smaller procedures (getting his port), or chemo (which is medical with terrible side effects), this time he was getting fully cut open. The surgeons were taking part of his liver, his gallbladder, and a part of his colon. They literally were taking away the cancer, but I felt it as they were effectively pulling link sausages out of my husband a la a Halloween bit I saw on Gilmore Girls.

It freaked me out. It’s because I knew the person I love the most was going to suffer and I couldn’t do anything to fix that. It’s a feeling of helplessness that I’ve never had before. Even when Zian was diagnosed with autism, I figured out the therapists or schools or additional support he needed and became his fiercest advocate. How can I do that here? I can’t. It’s scary.

Even the liver surgeon said the same — he said I had the hardest job the day of Sachin’s surgery was mine because I would be sitting around and waiting for updates. He was right.

Every 90 minutes during the 7ish hour surgery, I would get a call from a nurse or a surgeon telling me how Sachin is doing. And I’m about 98% sure my heart would stop beating every time my phone rang. Then I would breathe a sigh of relief and text about 8 different group texts with the positive news. (I actually left the waiting room after a friend came with a sandwich because seeing droves of sick children was making my stomach churn with sadness while my husband was getting cut apart.)

Sachin’s surgery ended around 10pm and I basically charmed the nurse to let me see him after hours which was kind of her. He was slow but alive and in pain. However, the surgery went better than the surgeons expected — close to perfect.

In speaking with the liver surgeon, they were able to keep more of the liver than expected which is fantastic. That said, I was pretty shocked how much of the colon they took. When the colorectal surgeon came in I asked how much of his colon they took holding up my pointer finger and thumb about the length of an iPhone, thinking he would say 8 centimeters. And the surgeon held up his hands like a man talking about a grand fish he caught saying, “oh about a foot and a half!” Woof.

Now Sachin’s in recovery mode and is at the hospital for a few days. Hopefully, he won’t get tired of my company because that’s all I have to offer but I know we both feel better when together. So that helps me as much as it helps him. And I’m glad for it.

9 responses to “a tough gig”

  1. Dr Meena Bakare. I was with your father in GMC. Avatar
    Dr Meena Bakare. I was with your father in GMC.

    Awesome major accomplishment and great job. Whenever gets better back towards home and you chemotherapy true courage. Lot of support. Universe watching over you and family. Get well soon. Very proud of your courage and your family. Have a gritt and you will fly thru. Regards to family love to kids. Admiration for Supuna.Now last March. My regards to Dr Subhash Kulkarni. GMC mate. It will be major success but pain to insure. It will be ok eventually you will get freedom. You will watch Zion improve substantially at 10to 11.my experience. Best of luck may universe watch over you and your suffering. Give you strength and support. It will all be okay. Second chanc at life. Blessings.

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  2. Dr Meena Bakare. I was with your father in GMC. Medical college in j j hospital Avatar
    Dr Meena Bakare. I was with your father in GMC. Medical college in j j hospital

    Awesome major accomplishment and great job. Whenever gets better back towards home and you chemotherapy true courage. Lot of support. Universe watching over you and family. Get well soon. Very proud of your courage and your family. Have a gritt and you will fly thru. Regards to family love to kids. Admiration for Supuna.Now last March. My regards to Dr Subhash Kulkarni. GMC mate. It will be major success but pain to insure. It will be ok eventually you will get freedom. You will watch Zion improve substantially at 10to 11.my experience. Best of luck may universe watch over you and your suffering. Give you strength and support. It will all be okay. Second chanc at life. Blessings.

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  3. You are both so strong. Thank you for sharing, hang in there.

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  4. The SFH DP OR Staff Avatar
    The SFH DP OR Staff

    Thank you for the update. Wow! We will continue to send so many prayers to Sachin and your whole family
    Love- The St Francis DP OR Staff

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  5. Thank you so much for details about the surgery Sapana. Yes. Wait must be hard on you. We wish Sachin speedy recovery and to take his pain away. You and family are in our thoughts and prayer.

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  6. Hi Sapana,  My heart goes out to you I can’t imagine what you are going through. I think of Sachin you and your children all the time. I’m happy the surgery is over and hoping Sachin is home by now and he’s pain free and comfortable .I am one of the Nurse Anesthetists and a huge fan of your husband. Sachin is an absolute pleasure to work with and socialize with. We had a great time at the Christmas party with the entire staff.  I hope to meet you sometime. Sachin has an army at St Francis pulling for him and supporting his strong efforts to Slay the Cancer. I hope he continues to stay positive I’m sure he will and improve every day.I know he has a enormous support system with family and friends but if there is anything I can do to help please let me know.I’m praying for Sachin you and the children. Lynn Reilly 

    Sent from the all new AOL app for iOS

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  7. Anil Uncle & Chandni Aunty Avatar
    Anil Uncle & Chandni Aunty

    Dear Sapana,
    We are very happy with Sachin’s progress.
    Chandni Aunty & I continue to pray for his full recovery. We have been keeping in touch with S & S K. We are especially thankful to you and very proud of how you are managing and helping Sachin face this hurdle. Stay strong!
    ♥️🤗😘☮️🙏.
    Anil Uncle

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  8. He is a brave warrior and with your strong support he will get well soon!

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  9. Thank you for the update!! Healing thoughts and prayers for Sachin!

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